Online Kendra Scott Give Back to 2026 Cure FA Soirée
May
1
to May 3

Online Kendra Scott Give Back to 2026 Cure FA Soirée

  • Kendra Scott Edmond Spring Creek (map)
  • Google Calendar ICS

Friends, family, and Cure FA Soirée supporters, shop at Kendra Scott Jewelry for your holiday gifts while supporting the 2026 Cure FA Soirée. Kendra Scott creates quality, affordable luxury products that make fashion and its trends truly accessible.

Shop online May 1-3 using the code GIVEBACK-LUMLS at checkout. Code expires at 11:59 pm Central on May 3.

Please share this with all your friends and family, and help us fund the research to find a cure for Friedreich's Ataxia (FA)!.

20% of all sales will be donated to the 2026 Cure FA Soirée.

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In-Store Kendra Scott Give Back to 2026 Cure FA Soirée
May
2
12:00 PM12:00

In-Store Kendra Scott Give Back to 2026 Cure FA Soirée

  • Kendra Scott Edmond Spring Creek (map)
  • Google Calendar ICS

Friends, family, and Cure FA Soirée supporters, shop at Kendra Scott Jewelry for your holiday gifts while supporting the 2026 Cure FA Soirée. Kendra Scott creates quality, affordable luxury products that make fashion and its trends truly accessible.

Visit the Edmond Spring Creek Kendra Scott store (1452 S Bryant Ave, Edmond, OK 73034) and mention Cure FA Soirée at checkout.

20% of all sales will be donated to the 2026 Cure FA Soirée.

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FA Awareness Day Skydance Bridge Lighting
May
17
5:30 PM17:30

FA Awareness Day Skydance Bridge Lighting

Friedreich’s Ataxia (FA) Awareness Day is annually held in May to raise funds and awareness for the progressive neuromuscular disorder. May is recognized as FA Awareness Month, with events organized by the Friedreich's Ataxia Research Alliance (FARA).

Purpose: To highlight the challenges of living with FA, support patients, and advance research for treatments.

The Skydance Bridge in Oklahoma City (OKC) is a 380-foot-long, 197-foot-tall pedestrian bridge featuring a, color-changing LED system that illuminates nightly, often appearing in vibrant blues, purples, and pinks. Inspired by the scissor-tailed flycatcher, it uses 33 floodlights and 16 wash lights to light up the wings, which can be programmed for special events. It features over 600 angled steel feathers on the wings to resemble the state bird, the scissor-tailed flycatcher.

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Jun
6
to Jun 9

2024 Soirée FAmily Weekend Schedule

FAmily Activities (* = tentative)

  • Thursday, June 6

    • 6:30 pm - Dinner *

    • 9:00 pm - Drinks *

  • Friday, June 7

    • 1:30 pm - Lunch *

    • 2:00 pm - National Cowboy and Western Heritage Museum

    • 7:00 pm - Oklahoma City Baseball Club (Dodgers AAA) Game *

  • Saturday, June 8

    • 11:30 am - Lunch*

    • 2:00 pm - Pharma/FA Research Meet and Greet

    • 6:00 pm - Cure FA Soirée

  • Sunday, June 9

    • 11:00 am - FAmily/Out-of-Towner Brunch

    • 2:00 pm - Swimming *

    • 6:30 pm - Dinner *

Details and sign-up information will follow in future emails to the FA Community. To ensure you receive emails, send your contact info to info@curefasoiree.org.

Book your hotel before the Soirée rate expires on Thursday, May 9: Hilton Garden Inn - Edmond | hotel.curefasoiree.org. There are no remaining rooms with roll-in showers, but if you need to use a roll-in shower at the Hilton Garden Inn, notify Michael Gehr in advance and he will talk to folks in those rooms.

Thanks to a friend who works at United Access, there’ll be a couple of vans available that fit two wheelchairs each. Let Michael Gehr know far in advance if you’d like to use one at some point.

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