Saturday, June 13, 2026
Omni Hotel
Oklahoma City

New Designs for 2026!


FAer and Cure FA Soirée co-founder Michael Gehr spent six weeks Down Under participating in a Design Therapeutics open-label, phase 1 safety trial for a new investigational drug designed to address the underlying cause of Friedreich’s ataxia. Read more


 
 

The Cure FA Soirée team
proudly announces

The 2025 Soirée sent
$595,000 to FARA!

35 people with FA attended

38 families of people with FA
attended from 15 states

365 people attended

People watched online from
Brazil, Canada, England, India, & Netherlands as well as in 16 states
(CO, IL, KY, MA, MI, MN, MO, NC, NY, OH, OK, RI, PA, TN, TX, WA)

A brief intro to but a few FAers who attended our 2025 Soirée.


the Friedreich’s Ataxia Research Alliance

8 Soirées: $2.1 million to FARA!


2026 SPONSORS

DIAMOND SPONSOR

 
 

PLATINUM SPONSOR

 
 

 

GOLD SPONSOR


 

SILVER SPONSORS

 
 

Bronze Sponsor

The Ceresa Family
Gary & Michelle Chilton
Universal Fidelity Life Insurance