Saturday, June 13, 2026
Omni Hotel
Oklahoma City
Travel grant opportunities
The Cure FA Soirée Travel Grant Program was created to make the Soirée more accessible to people with Friedreich’s Ataxia and their families. The Cure FA Soirée is a fundraiser, but Soirée organizers want it to also be an FA Community building event!
New Designs for 2026!
FAer and Cure FA Soirée co-founder Michael Gehr spent six weeks Down Under participating in a Design Therapeutics open-label, phase 1 safety trial for a new investigational drug designed to address the underlying cause of Friedreich’s ataxia. Read more
The Cure FA Soirée team
proudly announces
The 2025 Soirée sent
$595,000 to FARA!
35 people with FA attended
38 families of people with FA
attended from 15 states
365 people attended
People watched online from
Brazil, Canada, England, India, & Netherlands as well as in 16 states
(CO, IL, KY, MA, MI, MN, MO, NC, NY, OH, OK, RI, PA, TN, TX, WA)
A brief intro to but a few FAers who attended our 2025 Soirée.
Soirée Stories in the News:
The Oklahoman (newspaper)
We appreciate all of the coverage from our local media outlets!
the Friedreich’s Ataxia Research Alliance
8 Soirées: $2.1 million to FARA!
2026 SPONSORS
DIAMOND SPONSOR
PLATINUM SPONSOR
GOLD SPONSOR
SILVER SPONSORS
Bronze Sponsor
The Ceresa Family
Gary & Michelle Chilton
Universal Fidelity Life Insurance