Saturday, June 13, 2026
Omni Hotel
Oklahoma City
New Designs for 2026!
Upcoming Events
9 am-2 pm at the Omni Hotel
Make it a FARA weekend and attend a free in-person education event in Oklahoma City!
FA Research Receptions provide individuals and families affected by FA with up-to-date information about FA research and an opportunity to meet with others in the community.
Learn more and register at Oklahoma City FA Research Reception. Separate registration is required.
Diagnosed with Friedreich’s ataxia at just 10 years old, Sam Dupre has spent more than two decades learning how to navigate life with a rare, progressive disease. Through writing, community, and advocacy alongside his sister Sydni, Sam continues to push forward with resilience and hope. Read how he’s turning challenges into stories and helping raise awareness for FA.
The Cure FA Soirée team
proudly announces
The 2025 Soirée sent
$595,000 to FARA!
35 people with FA attended
38 families of people with FA
attended from 15 states
365 people attended
People watched online from
Brazil, Canada, England, India, & Netherlands as well as in 16 states
(CO, IL, KY, MA, MI, MN, MO, NC, NY, OH, OK, RI, PA, TN, TX, WA)
A brief intro to but a few FAers who attended our 2025 Soirée.
Soirée Stories in the News:
The Oklahoman (newspaper)
We appreciate all of the coverage from our local media outlets!
the Friedreich’s Ataxia Research Alliance
8 Soirées: $2.1 million to FARA!
2026 SPONSORS
DIAMOND SPONSOR
platinum sponsors
gold sponsors
silver sponsors
bronze sponsors
The Ceresa Family
Gary & Michelle Chilton
Kendra Scott | Edmond Spring Creek
Universal Fidelity Life Insurance